LINCOLNTON, N.C.––A special little boy just had a big wish fulfilled.
Hunter “Mad Max” Edwards, nicknamed for the Mel Gibson movie of the same name, is the son of Matt and Cynthia Davis of Lincolnton. Young Hunter has a brother, Haden, and a sister, Penelope.
According to spokesman Brent Lewis of the Kids Wish Network, 7-year-old Hunter suffers from a rare type of neurofibromatosis, a genetic disorder that causes tumors to form on nerve tissue.
“Hunter was also behind in developmental milestones, such as talking and walking,” said Lewis, “and it was obvious to Hunter’s mom that he also had pain in his legs. When he was a toddler, he started taking medication. Hunter also receives occupational, physical and speech therapies.
“Hunter has undergone seven surgeries in the past six years,” he added, “and last year he was also diagnosed with Chiari malformation, a condition in which brain tissue extends into the spinal canal. It occurs when part of the skull is abnormally small or misshapen, pressing on the brain and forcing it downward. A routine MRI showed that he also had a mass on his brain that was continuing to grow, so Hunter had surgery to help relieve some of the pressure. He struggles with balance, memory loss and back pain. Hunter has a feeding tube and is very limited in physical activity. He now takes multiple medications for a variety of ailments, and recent testing revealed that he has three tumors on his kidneys. Hunter is always exhausted and sleeps 18 to 20 hours a day. There are some days that he doesn’t get out of bed at all.”
But it’s not all so grim. Hunter still has fun, as Lewis informed.
“Even though Hunter struggles with so many health conditions, he still remains sweet and happy and is a fighter in battling his illnesses,” he said. “His favorite activities are drawing, playing video games and building Lego sets.”
And that’s where the wish comes in. Hunter wanted to have all the types of Lego toys––Danish-made, interlocking, miniature, plastic bricks––that are available in the world. So Thursday evening, that’s just what happened. A ginormous lot of Lego’s was delivered to Hunter’s home in Lincolnton, all thanks to mom Cynthia and neighbors and fellow church members Al and Rosemary Hubbard. Unbeknown to her son, Cynthia wrapped up the Lego toys.
And Hunter got a big surprise when invited guests crowded on to the lawn to see him unwrap the Lego’s and spread them all upon a blanket. This was, as Lewis noted, a once-in-a-lifetime thrill for a special little boy.
He added that Hunter and his family are soon to seek treatment at St. Jude Children’s Research Hospital in Memphis, and everyone at the Kids Wish Network wishes Hunter well in his fight.
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